Monday, February 27, 2012
The "MS" Word
Its been a wonderful month living in paradise, waking up to sunshine every morning. Being able to open all the sliders to the lanai so the warm tropical breezes can blow through the house all day. I've nearly completed the project, and I am quite happy with the way that it turned out. But, my heart is heavy. And in between having a good time here, I have been very concerned with Scott.
As most of you know, Scott has Multiple Sclerosis. However, since his diagnoses in 1997, it has been nonprogressing. Therefore, we really don't talk about the MS word. And since the winter of 2011, he has also suffered from occipital neuralgia, which causes pain in his neck and head. Things have changed, the neuralgia pain is back and the MS has reared it's ugly face upon us, causing his gate to be off, numbness on his left extremities and cognitive difficulties, which have made it very difficult for him to do his job well. So.....the cats out of the bag so to speak. He's told his boss, had conversations with HR at Fox, which for Mr. Private Pants, was very very difficult to have to do. And surprise to him, they were all very receptive and caring, regarding the matter. He is now under the care of a new neurologist. And treatment has been prescribed.
So on Saturday, I was able to observe through Face Time (thanks Steve Jobs) a nurse at our home giving us instruction on a daily injection that Scot must do, called Copaxon. He gave himself the first one, and on Sunday, Hannah gave him one in another injection sight. Scott said she was a natural. I guess they hurt and there will be trial and error with the depth of the needle and the particular sight chosen. A daily reminder that, yes he has MS.
It's been difficult to be a long distant cheerleader, sometimes I make myself ill, with worry. Most of me says get home now, but I have not been mentally prepared for the drive, and I had commitments that took me until this weekend. But I'm gearing up, and my sweet mother has volunteered to drive home with me to keep me company (as she snoozes in the passenger seat).
This trip, I am considering strongly, stopping at those Kentucky Bourbon distilleries. JK (but no, seriously)
For those of you that are praying for us, please continue, and we will except any new prayers as well. Scott is seeing another specialist today for other internal issues, let's pray that it turns out to be nothing more to deal with. God is Good.
See you soon, I miss you all.
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